NYUMets Open Data Registration

By registering for downloads from the NYUMets Dataset, I agree to this Dataset Sharing Agreement, as well as to the terms of use as posted and updated periodically at: http://nyulangone.org/policies-disclaimers/disclaimer.

1. The NYUMets Dataset is considered proprietary to and owned by New York University and NYU Langone Health (together “NYU”). Other than the rights granted herein, NYU retains all rights, title, and interest in the NYUMets Dataset.
2. Subject to the provisions of this Agreement, NYU shall give to me access to and the right to download the NYUMets Dataset, and NYU hereby grants to me a non-exclusive, royalty-free license to use the NYUMets Dataset for internal research or educational purposes only and only as permitted by this Agreement. This Agreement conveys no other rights of any sort with respect to the NYUMets Dataset or the intellectual property rights embodied therein.
3. I will receive AWS permissions to access the NYUMets Dataset without charge for internal research or educational purposes only. The link will permit me to download and access a verbatim copy of the NYUMets Dataset solely for such use. I will NOT SHARE THE DOWNLOADED DATA or AWS Account Access Credentials to the NYUMets Dataset with others. If another user within my organization or elsewhere wishes to obtain a copy of and use the NYUMets Dataset, they must register as an individual user and comply with all the terms of this Agreement.
4. I will use the NYUMets Dataset for internal research or educational purposes only and only as permitted by this Agreement.
5. I further agree to:
   1. Use the NYUMets Dataset in compliance with all laws, governmental regulations and guidelines, including obtaining all approvals for the proposed use of the NYUMets Dataset to comply with federal, state, local and institutional policies and regulations.
   2. Not SELL OR OTHERWISE MONETIZE any portion or all of the NYUMets Dataset.
   3. Not DISTRIBUTE, PUBLISH, REPRODUCE, RETRANSMIT, COMMERCIALLY EXPLOIT, COPY OR OTHERWISE TRANSFER any portion or all of the NYUMets Dataset or any subsequent variables, software, or data files derived from or using the NYUMets Dataset to any person or entity other than individuals under my direct supervision and other than for uses in academic publications and presentations with citations as provided in paragraph 6 below. I will ensure that no one will be allowed to take or send the NYUMets Dataset to any other location, unless prior written permission is obtained from NYU.
   4. Require anyone who receives or has access to the NYUMets Dataset to agree to the same restrictions and conditions on the use and/or disclosure of the NYUMets Dataset that apply to me.
   5. Maintain the security and confidentiality of the NYUMets Dataset and use appropriate safeguards to prevent any unauthorized use or disclosure of the NYUMets Dataset.
6. I agree all publications and presentations resulting from any use of the NYUMets Dataset must cite use of the NYUMets Dataset as follows:
   1. In any published abstract, I will cite “NYU NYUMets” as the source of the data in the abstract.

   2. In any published manuscripts using data from NYU NYUMets, I will include language similar to the following in the methods section of my manuscripts in order to accurately acknowledge data source: “Data used in the preparation of this article were obtained from the NYUMets repository at https://nyumets.org. As such, NYU NYUMets investigators provided data but did not participate in analysis or writing of this report. A listing of NYU NYUMets investigators, subject to updates, can be found at https://nyumets.org. The primary goal of NYUMets is to investigate the dynamics of metastatic cancer over time, and to refine machine learning based analyses of metastatic cancer.” I acknowledge that, depending upon the length and focus of the manuscript, it may be appropriate to include more or less than the above, and further acknowledge that inclusion of some variation of the language shown above is mandatory.

      Other than citations as provided in this paragraph 6, I will not use the name, symbol, or mark of NYU or any of its affiliates or of the NYUMets Dataset in connection with any products, promotion, financing, advertising, or sales literature or in any form of publicity without the prior written approval of NYU.

7. The NYUMets Dataset has been collected from human subjects. I should not receive any protected health information (PHI). All metadata in the NYUMets Dataset has been de-identified and anonymized using dummy numbers and no longer represents PHI. If I suspect that certain data includes PHI, I will not use the PHI for any purpose, I will immediately destroy such data, and I will immediately contact the NYU NYUMets principal investigator listed at https://nyumets.org.
8. I will make no attempt to use the information in the NYUMets Dataset to identify the individual subjects or to contact such individuals or link the NYUMets Dataset with any other dataset.
9. Except as contemplated by paragraph 7 above, I will not contact NYU or anyone at NYU concerning any individual subjects or seeking information about them.
10. The NYUMets Dataset has not been reviewed or approved by the Food and Drug Administration, and is not provided for clinical use. In no event shall any data or images in the NYUMets Dataset or generated through the use of the NYUMets Dataset be used or relied upon in the diagnosis or provision of patient care.
11. I will report to NYU any use or disclosure of the NYUMets Dataset that is not permitted by this Agreement or required by law within 5 business days of becoming aware of such use or disclosure.
12. When I have completed my work using the NYUMets Dataset, I will destroy all copies of the NYUMets Dataset and retain no copies thereof.
13. I understand that failure to abide by the terms of this Agreement will result in immediate termination of use as well as privileges to access the NYUMets DataSet. In the event that NYU determines that I have violated this Agreement or other impermissible use has been made, NYU may direct that I immediately destroy all copies of the NYUMets Dataset and retain no copies thereof even if I did not cause the violation or impermissible use.
14. The NYUMets dataset is provided “as is”. NYU MAKES NO WARRANTIES, EXPRESS OR IMPLIED, INCLUDING ANY WARRANTIES OF MERCHANTABILITY AND FITNESS FOR A PARTICULAR PURPOSE OR OF NON-INFRINGEMENT, AND HEREBY DISCLAIMS THE SAME.
15. In no event shall NYU, or NYU partners be liable for any use by me of the NYUMets Dataset resulting in any loss, claim, damage or liability, of whatsoever kind or nature, which may arise from or in connection with this AGREEMENT or the use, handling or storage of the NYUMets Dataset.
16. I agree to indemnify, defend, and hold NYU and its affiliates and affiliated hospitals, and each of their trustees, directors, officers, representatives, partners, faculty, students, volunteers, employees, or agents (each, an “NYU Indemnitee”) harmless from any claims, losses or damages, including legal fees, arising out of or resulting from my access to and/or use of the NYUMets Dataset or any failure to abide by the terms of this Agreement, except to the extent caused by an NYU Indemnitee.
17. This Agreement shall be governed by and interpreted in accordance with the laws of the State of New York. The exclusive venue for any dispute relating to this Agreement shall be in the state or federal courts within New York, New York.